Lupus Q&A 5

by | Oct 20, 2017 | Lupus Blog | 0 comments

It’s another Q&A Friday! Thank you to those of you who asked questions this week. If you’re interested in having a question featured on our next Q&A Friday, visit our Lupus Rebel facebook group here and ask your question on the Q&A pinned post anytime from Monday through Thursday.

This week’s questions and Dr. Connie’s responses:

  1. How does lupus affect blood sugar? My fasting glucose is good, but there are times when my blood sugar will drop. I get dizzy, nauseous, and get very sweaty. I have to sit or lie down. The only way to make it stop is to eat a snack. This has happened at times when I shouldn’t have been hungry.

Blood sugar can be affected by Lupus as we generally have overall systemic inflammation and it can cause metabolic disorders like insulin resistence or insuling sensitivity. Without measuring the specific levels it’s hard to say that your blood sugar is low just with dizziness, nausea, and sweaty palms. While they are certainly sympotms of hypoglycemia, they can also be due to other physiological factors like thyroid disorder, hypertension, etc. Rather than suspecting the blood glucose as the issue, I would question your thyroid function as well as to get a HGA1C which is a mesure of your blood sugar levesl over a 3 month period to rule out and diabetes.

  1.  Hi Connie, how do you know when you have a flare and are out of a flare. My joints are constantly hurting and the fatigue is horrible.

Low level disease activity can be chronic and can cause some joint and muscle pain along with fatigue.  We just are more predisposed to it due to the systemic dysfunction.  Flares to me are hard flares where it involves a spike in biomarkers like the dsDnA and progressive decline of complement levels with symptom exacerbations.  Knowing we have Lupus those aches, pains, and fatigue are expected and when discussing with your rhemy.
  1.  Is there a difference in being in a flare, and being in a constant state of disease activity? For example, my inflammatory markers are high, CRP, Sed rate, double-stranded DNA, complement levels in normal range, CPK below normal, CBC within normal range except for wbc usually on the high side, which is attributed to steroid use. I have been in this state of disease activity for the last 10 years basically bedridden, on Prednisone, plaquenil, and MTX., and I often wonder does one consider this a long flare which sounds outrageous, or is this just the constant state of my condition with Lupus? Thank you.

This is why I started this “create health” movement.  We got diagnosed with Lupus or any other autoimmune diseases.  From that point forward, we make assumptions about our health based on that diagnosis.  So those inflammatory markers like high CRP, Sed rate, (are universal for all disease, even at my worst, those have been normal for me).  dsDNA, complement levels are considered specific to Lupus.  Rheumatologists want to “manage” the disease, as they assume it’s not curable.  So they place us on prednisone, plaquenil, methotrexate forever and ever unless you as the patient begins to ask the question of what does my long term prognosis look like with these meds.  We already know the damage that prednisone does, and methotrexate but in the medical community those damages are a necessary evil to control the symptoms of the disease.  This is where I hope to empower you to do your part in getting your body back aligned, by decreasing toxic load from food, exercising to improve metabolic function, and to understand your biology so that you can ask the right questions.  Over 70 percent of immune modulators reside in the gut, so when I recommend the elimination diet, its a “control” that you can have to decrease the toxic burden.  As for the supplements to help you to heal your gut permeability (leaky gut),, these are real preventive and healing measures that changes lives everyday.  Does that make sense?
Lupus doesn’t make sense because “Lupus” or any other disease is just a name that we place on a number of symptoms.  It’s not about the disease.  It’s about YOU…..its about WHO has the disease because we manifest so differently.
  1.  Why do the doctors want to put people on depression drugs?

Chronic Disease patients are often in pain and pain tends to make patients depressed and anxious.  Doctors are trained to prescribe so the easy answer to a complex question is to write a prescription for a pill.  My dear friend told me one time that in medical school, they consider prozac as the necessary vitamin P.

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