Click the video above to watch this week’s Lupus Q&A or keep scrolling if you prefer to read the Q&A! If you would like to have a question answered on our next Lupus Q&A, comment on this blog or post your question on our Lupus Rebel Facebook group.
Melody Lyons: What natural solutions do you employ when you flare? I am not on any meds because I don’t believe the benefits outweigh the risks for me at this point. I eat an anti inflammatory diet and supplement. Have you found anything specific that calms the immune response that isn’t a medication?
There’s many natural solutions for your flares. Flares can manifest differently for Lupus patients. from severe fatigue, pain, to organ involvement. While anti-inflammatory diets are generally good, there are many different versions of this diet and I would want to know what you’re following. Generally in order to decrease inflammation, you’d want to eat nutrient dense, whole foods (that abide by natural laws, local, sustainable, free of engineering), not too much, and get a balance of macronutrients. For flare altering diets, I’d advocate what I call the KMA Nutrition Plan, where we pull the benefits of ketogenic, mitochondrial (pale-mediterranean), and alkalizing (plant based) foods. Supplements to boost gut restoration is key to help your body at the molecular level enhancing the efficiency of your mitochondria, where the energy in the body is produced, and this energy is used by all our organs and impacts our systems.
Cindy Lewis: Having difficulty with hands, opening and closing. I do have RA but this is new. It’s painful, hands feel tight. Can’t take Motrin due to stomach upset. Do you recommend gloves or splinting or any medications?
You many be getting an RA flare which means that the antibodies are surging and attacking those joints in the hands. Splints and gloves won’t be of help long term as they involve more of what we call the fine motor joints of your hands, but fist pumping exercises and gentle stretches of your hand muscles may be helpful. I would also recommend a therapeutic dose of good quality fish oil, 2-3 g which is an effective anti-inflammatory, and curcumin. I’ve seen drastic improvements. CBD oil also maybe helpful, I’ve found a vendor and read up on the research to convince me that this may be beneficial. You can’t purchase on your own so if you are interested, I can help you with this purchase.
Carla Teresa: What happens if you stop your lupus meds? Not intentionally, due to no insurance.
If you’re flaring, it can be detrimental. Lupus does need to be monitored by a rheumatologist and I would work on getting insurance asap. It also depends on what your symptoms were and what meds you’ve stopped.
Cynthia Hildreth: I hear people say they gain weight when they have Lupus. Why do people lose weight with Lupus?
Lupus causes inflammation in people and affects people differently. For some, the medications like prednisone can cause weight gain due to increased water retention and appetite. For others Lupus can cause nausea, vomiting, and loss of lean muscle tissue, also termed catabolism, which collectively alters their metabolic process and suppresses their appetite to cause the weight loss.
Thuyen Van: Has anyone with SLE been also diagnosed with androgenetic alopecia? If so, has anything worked for you? I’m currently on Spironolactone 25 mg for 2 months now and I am not seeing any improvement. I tried dioxin shampoo and at first my hair became thicker but now it’s so thin.
So first of all, what is androgenetic alopecia? It is a genetically determined hair loss characterized by the gradual thinning of hair that is typically seen in a balding man but some women are affected by this as well.
If you were genetically predisposed, there’s not much you can do about it but there are other factors with Lupus that can contribute to hair loss and thinning. I had alopecia very badly at the onset of my disease and had a couple of episodes to where I lost patches of hair. If it is due to Lupus, the Lupus Beauty Protocol from lupusfarmacy.com is what I used finally to get my hair as thick and long as it is, and control the hair loss. You can you biotin, dioxin (which I still do for good measure as I am paranoid about the hair loss). Hair loss will have periods of fluctuations but after the initial onset, I’ve never had it to cause baldness.