Lupus Q&A 13: Achieving Remission, Misdiagnoses, Metabolic Dysfunction, and Laryngitis

by | Dec 26, 2017 | Lupus Blog | 0 comments

Click the video above to watch and listen to this week’s Q&A! The questions and answers are also below if you prefer to read 🙂

Krish Sharma:  Are immune suppresents the only answer for controlling lupus or are there other options? Is there such thing as remission, if so how can it be achieved?

Immune suppressants are the primary method to control Lupus symptoms.  The other options can be pain medications and various chemotherapeutic agents that are more carcinogenic but also allows for  an immunosuppressive effect.
Anti-inflmmatory medications like CBD oil, fish oil, curcuminoids, and dietary intervention can help with this effect, as well as narcotics.
Anti-malarial medications, like Plaquenil are also used. Having said this, there are over 60 genes that metabolize various medications, which explains why some people respond to some meds while others have an adverse effect.
I would recommend the elimination diet to control inflammation. There are holistic detox protocols that I use on a regular basis for 3 months to reset and restore. If you are interested, you can read more here.

Cynthia Hildreth:  My question is why do doctors misdiagnose lupus so much? Is lupus a new illness to the medical industry? I’m hearing a lot of people saying they were told they had lupus, then they don’t and get diagnosed with fibromyalgia, which are 2 different things, right or wrong?

As I always say, Lupus is essentially a dysfunction of our immune system.  It’s important to also note that there are over 80 different types of autoimmune disorders and this number has been dramatically increasing since 1939.

Collectively, autoimmune disorders are among the most prevalent diseases in the US; they are the third most common category of disease after cancer and cardiovascular disease, affecting approximately 5 to 8% of the US population or 14.7 to 23.5 million people.

Given such statistics, it’s getting harder for doctors to diagnose and differentiate between autoimmune diseases.  For example, Lupus and Fibromyalgia share similar symptoms and overlap many others.  This is precisely why I want to encourage you to do your part in staying well so that you can rise above such staggering statistics and beat Lupus.

While prescription meds remain at the forefront in the battle against autoimmune disease, researchers are recognizing  other treatment modalities (including exercise and meditation) to help improve patients’ quality of life.

Ellen Verstrataen:  Anyone also have big problems with doctors? They forget tests to do, don’t believe you, give the wrong diagnosis, say different things. You have to go to the emergency room before the doctor believes you… I don’t know anymore.

While I’ve never been subject to such issues with my docs, it’s becoming increasingly more common.  It’s frustrating as patients to be under the care of a less than nurturing doc who wants to provide solutions in the way of a pill.

Even with meds, if you’re not carefully tracking your dosing and symptoms, your doctors can’t possibly stay on top of your symptoms and address them to the level that they need simply because the medical system, by design, is set up for sick care.

Medical system is highly bureaucratic, and doctors are under the dictation of third party insurance payers to shorten visits and overprescribe medications or procedures, which may be a waste of time and resources.  Again, that’s why I do what I do, to make sure to equip you to fend for yourselves.

Marina Completo: I have both lupus and Sjogrens’s. In addition to adult onset asthma and Type II diabetes. Do you know anyone that has tried NDL therapy and/or can you comment on it? The comments I’ve read on it seem encouraging. I am so ready to feel “normal” again. Like not having overwhelming fatigue for 20 hours a day. Thanks! 

Marina, you have a metabolic dysfunction as well as an immune dysfunction.  Which means overall, you have a mitochondrial dysfunction.  Your cells are not able to adequately produce energy.  I can tell you diets can help you to improve cellular receptivity and restore gut permeability.  Please pm me if you’d like more information about supplements and programs that we offer.  Unfortunately,  I don’t know much about NDL therapy.

Fatima Alfonsina:  Does anyone lose their voice a lot? Last month I lost my voice for 2 weeks and this month it is starting again. No sore throat, no fever, no chills, then poof, just goes away.

Losing your voice frequently leads me to think it’s acute laryngitis, which is an inflammatory condition affecting the vocal cords due to too much use, like singing, or viral or bacterial infection.  In the absence of any of those, it may be due to the systemic inflammatory nature of Lupus, that for you, targets your vocal cords.  Drink lots of water, and also try a therapeutic dose of fish oil (2-3 g of DHA/ EPA) and curcumin.
Thanks for such great questions!  Just want to mention that we’ve been working double time to launch our Reverse Lupus Membership program, where for a minimal fee per month, you get functional medicine prescription and lifestyle guidance in a step by step format to set you up to REVERSE Lupus in 2018.  For more information, click here.

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