Lupus Q&A: Protein Intake, Pain Management, and Lupus Test Results

by | May 11, 2018 | Lupus Blog | 0 comments

Click the video above to watch this week’s Q&A. The questions and answers are below if you prefer to read 🙂

Jean Moran Hirth: As a person living with managed lupus, should I ever limit protein? With low dose plaquenil, a little medical marijuana, and lots of your suggestions, I’m finally feeling better. I started weight training two months ago. I like it. I’m feeling strong. The trainer recommends lots of protein. 26 grams about 3-5 times a day. Is that ok for me? (I’ve not had lupus kidney damage – that I’m aware of).

That’s awesome Jean!
Yes too much protein can be acidic.
There’s protein in vegetables like kale, spinach, broccoli, peas and other non meat sources like quinoa, nuts, seeds, and beans. Refrain from getting protein from conventional meats. Rather if you do eat meat, choose the organic options.
And if you’re not on an elimination diet, which I recommend you cycle every 3-6 months, then eggs are great source of protein.
I am opposed to getting down to counting calories or grams. I would rather you listen to your body and incorporate all the great protein sources that I mentioned and if you’re full, then stop eating.
As a general rule, if you were to have straight up protein from meats, then the portion would be the size of your palm. Eating shouldn’t involve calculations and metrics. Rather, cultivate awareness in your body and own the experience.
Remember, vegetables, grains, nuts, seeds, and beans also contain fiber, carbohydrates, and protein as well as other essential vitamins and minerals so it’s really hard to break food down to grams.
I hope this helps.
Glad you’re feeling well.

Nancy Los Batcho: Hello! I am new to this group and I am so happy to be here. My question is this, does anyone have suggestions on how to manage pain? I am in a flare right now and have terrible pain. What has worked for you?

Welcome Nancy! Pain is due to the systemic inflammation in our bodies. Inhibiting the inflammatory biochemical pathway is the way to go. CBD oil, curcumin, or therapeutic dose of good quality fish oil, are good options to supplement with as well as to follow the elimination diet under files in our Facebook group. Doing gentle yoga classes will also help with pain.

All these things will collectively help you.
We have the above mentioned supplements on

Cheryl Ann Asher: Why with Lupus test results can it show you have positive ANA sometimes and another times you do not? Does it have to do with flares? I have one friend who had 6 positive and negative results. Everyone is different I know, but that is a puzzling part of Lupus!

2 % of Lupus patients have a negative ANA but generally 98% of us with Lupus have a positive ANA.
This is why other Lupus markers are measured to understand the overall disease activity. I would highly recommend AVISE testing to make sure that you do indeed have Lupus, as the test has a highly specific marker that can help. Also, it can rule out other autoimmune conditions so ask your doctor about this.

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